Vlog!

So I made this blog video the other day, it is the first of many to come!
It will go farther than being just about CF but since CF if a big part of my life i thought i would start there!
Check out my video and tell me what you think!

Also today is my first day off bed rest! Thank goodness I was going mad! And so far so good, i've been feeling a lot better and I can walk farther than 4 feet without feeling out of breath! Which is the first time in a long time!

I have made a decision, a decision that will change my life hopefully for the better but we'll see.
I don't think I am going to continue with the college, at least not like I am it is not the most important thing in my life, and while I have tried so hard to make it, it will never be.

Maybe this is a reality check, maybe it's nothing at all.
I am really tired, and I've been very sick the past 5 months I've been on IV antibiotics and they didn't help, I spent a week in the hospital and nothing. I've been pretending i'm fine, that it was all nothing that it was going to go away, but It won't.  I can't walk up a flight of stairs without needing a 5 minute break to catch my breath. I have spent a long time pretending but i think it's time to realize that I am sick, someday i won't get better, there will be no fixing me and I am grateful that it isn't today, and I'm done treating today like it's nothing.

I've decided that I will jump head first into the dreams I used to plan my life around, no matter how childish or unrealistic people think they are.
I sing. I love to sing, and I am SO lucky to have a voice.
I've lost friends, fellow Cystic's and I want to be their voice. I want to stand in front of people and tell them that I am a Cystic, but I am also lucky to experience life because some people never do.

I want to teach people that life isn't something to be quoted or stared at it's something to be experienced. Speak the words live in those moments you think are impossible because they're not.

You're not impossible.


Marissa Parks

Patience

So I went to class this morning, but I ended up getting really sick so i came back home. Now I have resorted to laying on the couch watching Kitchen Nightmares before I get the courage to start preparing dinner for my family. On the menu tonight Creamy Cajun Chicken Pasta! One of my favorite dinners hopefully i'll be able to eat it.
On top of all that I am trying to be patient and wait for the Disney College Program applications. I have been waiting to apply for the program for about two years now after i first heard about it, and this is the right time for me to go off and work at Disney World! It is important for me to get this CP because I hope to work with Disney in the future so getting my foot in the door here is a great start! Rumors have it applications will be out sometime this week, right now everyone is expecting Friday since they haven't come out today (yet) but there is still hope for tomorrow!

I am ready to be living and breathing at Disney!
Just let me go!

Marissa

Bed time

Goodnight my friends,
Today was a long day, I've been coughing a lot more and my chest has been sore all day so hopefully I can make an appointment to see my CF doctor next week or the week after. See what he has to say about everything. I just finished IV meds the 15th of December so hopefully I won't have to be back on those for a while, but I feel pretty crummy.
It would be nice to feel good for a little while, I haven't really felt alright in a few months, which makes me a little nervous, but all will be fine I'm sure!
I had a lovely dinner out with my family tonight, and have lots of homework to get done tomorrow to be prepared for classes Monday and a presentation to prepare for.
Monday marks the half way point for the semester and I'm excited! But that also means I need to get started on the final report I have for one of my classes!
We'll see how well that goes over, I'm such a procrastinator!

Best Wishes,
Marissa