Showing posts with label life. Show all posts
Showing posts with label life. Show all posts

Monday, February 18, 2013

Vlog!

So I made this blog video the other day, it is the first of many to come!
It will go farther than being just about CF but since CF if a big part of my life i thought i would start there!
Check out my video and tell me what you think!


Also today is my first day off bed rest! Thank goodness I was going mad! And so far so good, i've been feeling a lot better and I can walk farther than 4 feet without feeling out of breath! Which is the first time in a long time!

Thursday, January 31, 2013

Welcome to my Life!

I'm terribly bad at this introduction thing, but i'll give it my best go.

I am Marissa Parks,
I'm a Nerd, Geek, Freak, Whovian, Jonite, musician, singer, dreamer, believer, traveler, and a Cystic and over all I just really enjoy life!

I'm 20 years old (as i write this) I am from Michigan born, raised and proud! I've been on a lot of journey's in my life, and I have so many more planned.

I have Cystic Fibrosis, it's a Genetic Disorder that causes my lungs to hold infections a lot easier and it causes my body to not take nutrition out of food when I eat. So basically that means breathing is a chore and gaining weight is harder for me than it is for others to lose weight. I have semi frequent hospital admissions and i am often on IV antibiotics, but it's never stopped me, i won't let it.

Music is extremely important to me, it is very difficult for me to explain what it means because in retrospect it means everything to me. Music is hardwired into my DNA it's something I could never live without. I listen to every kind of music and I enjoy most of them if not all. I believe in giving everything a chance, if someone else loves it there is a reason and I will always try to find that. Music is part of my soul.

I am very passionate, when i have my heart set on something I do everything I can to make it happen. I love working and trying new things and seeing new places and just living! 
In the past year I've lost 2 year friends to Cystic Fibrosis and I have vowed that I will live every experience I can, i will try everything and I will live.


Everyday is chance to show the world what your made of, and someday I hope to be remember for making it a better place. Maybe not by savings lives or inventing something grand, but i hope to show the world how to live just a little bit more everyday.


Best of luck out there!

Marissa